Showing posts with label NICU. Show all posts
Showing posts with label NICU. Show all posts

Monday, May 20, 2013

The Pinnacle Moment My Life Changed Forever

These past few months have been a time of self reflection. I knew I wanted to change my mindset back in January when I started this blog. I truly had no idea that I would be a completely changed person just by changing the way I thought about a couple of things. So lets go back..... Lets start with Elijah's birth story....

The pinnacle moment my life changed (without me even realizing it)....

I had an extremely trying pregnancy with Elijah. I had 3 pre-term babies before him, so I was bound and determined to stay pregnant as long as I possibly could, not matter what it took. I went on bed rest at 18weeks after a minor procedure to help me stay pregnant. Bed rest, was trying in its self... I have 4 other children so....... You can imagine how well that went over... At approximately 20 weeks I started feeling "off"... Out of breath, dizzy, tired.... You know, normal pregnancy symptoms... But it wasn't normal for me, it was very "off" for me. The Doctor, bless his heart, was reassuring that it was all normal stuff and every pregnancy was different.

Fast forward about 8 weeks.... My "normal" symptoms had become so bad that I was ceasing to function. I was so shaky and so dizzy, that I had to sit down in the shower. I had to sit on a stool to prepare dinner for the kids. I even remember a few evenings that I was so "sick" after being up cooking that I couldn't even sit up with them to eat, but walking to the living room was to far, so I laid on the floor right by the table..... I was that bad. But every time I would go into the office, my Doctor would check my blood pressure and heart beats, everything was always low but within normal limits. I was fine on my blood sugars and every other blood test they preformed came back normal..... This was not normal though..... They kept telling me that it was just the stress of having 4 other children while being on bed rest.... I knew in the pit of my stomach that they were wrong.... I just had no idea how wrong all the specialists actually were.

The day I was 36 weeks pregnant, I went into the hospital to have a minor procedure to remove the sutures that were helping me keep the baby in. In a matter of an hour, my entire world would be turned upside down. The procedure to remove the sutures went just as planned with no complications. I was wheeled into recovery to wait for my spinal block to wear off. I could feel the attack coming but I thought/was hoping it was the spinal block wearing off that was making me feel "off".....

As soon as I saw my nurses face, I knew that was not the case. My heart was crashing and I was in sustained Ventricular Tachycardia, a serious life threatening arrhythmia that can cause sudden death. All of a sudden I was caught in a whirl wind of activity. I had 4 doctors and several nurses surrounding me, attending to me, but discussing me as if I was not even there..... It was very surreal to hear the Doctors say things to each other like sudden death, flat line, heart giving out, cardio vert her (the shiny metal shocking paddles)..... I'm sitting right here... And I'm pregnant.... And you need to calm down right now.... Was what I wanted to scream.... But I couldn't find the words!! Was this really happening to me? Was I dying right here when it was supposed to be a simple thing?

I begged them to get my husband... They kept telling me he was coming, but he wasn't... It seemed like an hour before they brought him in... Although I am sure it wasn't actually that long.... I vaguely remember them telling me we had to do an emergency c-section so they could cardio-vert my heart.... If they did it while he was still inside, it would flatline him, with no way to correct him..... I don't know if I agreed, I'm sure I did, but I never signed the consent form until hours after... I remember starting to cry and thinking to myself that I couldn't because I needed to hold it together since I was still alone.... I asked one of the NICU nurses that works with my mom to call her, she told me no, that she couldn't ...

That was the moment I knew I was really in trouble....

They began to wheel me back into the OR for the emergency c-section without my husband. I begged for them to please stop and get him. About that time, they finally brought him in.... By this time, I had been in sustained V-Tach for (my guess by the chart chart records) about 30-40 minutes... I was not even in the OR for two full minutes before they had the baby out... (Thank goodness my spinal block had not worn off or they would have had to put me to sleep)... I heard him cry, just barely though, through the ringing in my ears.... I could honestly feel myself starting to pass out.... The sweet nurse brought him over to me and leaned him down so I could kiss him.... I had no idea this was the last moment I would get to see his soft skin or breath in his glorious newborn scent for 3 full days!!!! I don't remember much right after they took him. He was gone and I couldn't see him and that was all I could think of. They corrected my rhythm (for the time being) and sent me to surgical recovery as opposed OB recovery and rules say no visitors there. So Joseph must have gone out to be with the baby at that point although I don't really remember. I stayed in recovery for a couple hours where I continued to go in and out of V-Tach.

Finally, they decided to move me to ICU.... Here I was, thinking I was going to get to have the baby come in my room for a bit.... But once in ICU I had a new round of nurses who were truly panicking over the state of my heart.... They would come RUNNING in every few minutes to watch me while my heart went in and out of V-Tach... They gave me various medicines to try and correct it, one that even stopped my heart and then would allow it to restart, in hopes that it would restart in the right rhythm. That was one of the most bizarre feelings. I could actually feel my heart stop beating, pause, and then restart again.... I would not recommend that to anyone, ever....

This went on for the next day and a half... They wouldn't let me go down to see the baby for obvious reasons, but they wouldn't let anyone bring the baby up to me either, which was honestly killing me. By the end of the second day, my Doctor agreed to move me to a Telemetry Monitoring Unit, so I could go see the baby while still being on the heart monitors. I actually got excited that I would get to go see him. Little did I know, the deplorable nature of the nurses on the new unit. This group of nurses were the worst bunch of nurses I have ever been exposed to in my entire life. I can't even begin to tell you everything but it ranged from waiting well over an hour to help me get out of bed and walk to the bathroom for the first time since 2 days before when I went in for the first procedure (I ended up getting up myself and crying because the pain was so bad, without them coming to check on me) to them refusing to let me go to see my baby. They claimed my heart was to stressed to sit in a wheelchair and be pushed to the NICU, yet they "let" me get up on my own for the first time.... It ended with me screaming, not just yelling, but screaming at the nurses and calling them incompetent. The other patients could hear, Heck, I'm pretty sure other floors could hear me. My Cardiologist told me I could go see my baby, yet my nurses were claiming I wasn't allowed to... Mama Bear instincts kicked in....Aaaannnndddddd someone may or may not have ordered me anti anxiety meds (that I never took.... I didn't have anxiety, I was just pissed!!!)

My Doctor had decided to fly me out to another hospital to have a heart surgery that our hospital could not perform. It was the end of the 3rd day and I still had not even seen my baby, except that swift kiss in the middle of a sterile OR.... I sat on the edge of the bed and proclaimed that I would refuse to get on the transport unless I got to go see my baby right that minute... (In my head I was afraid for him, afraid I would die, afraid he would never know me, except for that fleeting moment we shared in the OR that he would never remember..... ) The pain I was feeling was suffocating and I was so terrified to admit that I was afraid I would die.... I had a brand new baby and 4 other children (who I also had not been allowed to see since I went in for that 'minor' procedure 3 days earlier..... Finally, the lame nurses agreed to let me go to see my baby, but I was only allowed 20 minutes... Hearing my time restriction was soul crushing... I honestly was terrified of dying on the table during surgery and they were telling me that I only had 20 minutes with my baby!

I drank up every second of that 20 minutes..... And once the 20 minute mark passed, I didn't rush to hurry back to the incompetent nurses, I just waited for them to call for me to come back. I waited until me last possible second to leave him, because I was stricken with fear that this was all he would know of me. I left the hospital an hour later, alone and scared to face a heart surgery with a three day old baby and 4 other children depending on me.

I decided right there in the transport, that I would make every minute count. I would make every day an important day. I didn't know how...but I would be a better Mom because of this. I was going to fight with all my love to get my heart right.

So here we are! Because of that one day, one horrible, awful, painful, soul searching, life changing, world tipping day.... I am here, I am better person. A better wife. And a better mother....

Because at that moment, my life changed forever!!!

Friday, January 11, 2013

Little Girls, Tutus & Ballet Slippers





There is something magical about teeny tiny ballet slippers.  Are these not THE cutest, tiniest pair you have ever seen? My littlest lady weighs all of 21lbs at 2 1/2 years old. She can still fit into 12-18mth clothes, so finding her dance attire for her new dance class was a challenge... She was born very premature, weighing in at her lowest 3lbs 6oz, and has struggled to keep up, developmentally, with her peers. We have been told that dance will help her tremendously with her high muscle tone, caused from how teeny she was when she  arrived.



She was very slow to warm up to the class, but what 2 1/2year old would not be. But once she did, she fell in love.  She danced around and practiced her turns just as the teacher instructed her.



My littlest lady pretended to be a butterfly with all the other little girls. For once, I forgot just how early she was as she kept pace with the other gilrs. Although she is markedly smaller than the rest of the girls in her class, she did just as well as anyone!  I was so proud of my lady!  As a girl who loved dance as much as I did growing up, seeing this smile on her face warmed my heart to no end!!! Absolutely precious!! 

As a Momma Bear of many NICU Babies, (Neonatal Intensive Care Unit) I love to see them thriving and achieving goals. My oldest little lady has over come so very much.  She was also a preemie but was a very very sick girl.  While in the NICU she fully coded (needed chest compressions and  all life saving measures) five...5...FIVE times.... There were many times when I had little hope I would ever get to see her out on the dance floor, clad in her ballet slippers and leg warmers... 

                             
She has learned to be a fighter with all she has been through. But she has also learned grace. She has learned to do the best you can with what you are given. This little girl, who has had to fight to breath more times throughout her 8yrs than most people ever have to their whole lives, can dance. She is learning to be beautiful on the dance floor and is loving every minute of it.  


These young ladies have a quality most adults have lost long ago. These girls dance with a passion in their heart and do not worry about what other people think of them. They have both fought hard to be here and they do not think twice about what their love looks like. My ladies know they love something and they pour their whole heart into it.  Why, as a society, can we not come together and celebrate life the way these girls do? 
They are what true love and ambition is!! 
My heart is out there on the floor, dancing their big hearts away!!!!
I am thoroughly enjoying and cherishing these SIMPLE JOYS!!!